Esante.gouv.fr
“Au-delà de la coordination qu’il permet entre professionnels de santé, le Dossier Médical Personnel donne au patient un droit de regard inédit sur sa santé. En cela, il est le symbole le plus visible d’une nouvelle conception du patient.
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Dave Chase, TechCrunch
“Being at the White House within a week of the 25th anniversary of President Reagan’s famous “Mr. Gorbachev, tear down this wall” speech at the Brandenburg Gate, it struck me that tearing down a wall was a good metaphor for what was the goal of today’s meeting. In many respects, healthIT is similar to the “walled gardens” that persisted in mobile phones until they were torn down by the iPhone and Google’s Android.
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Calvillo J et al, International Journal of Medical Informatics, 2012
Background
Advancements in information and communication technologies have allowed the development of new approaches to the management and use of healthcare resources. Nowadays it is possible to address complex issues such as meaningful access to distributed data or communication and understanding among heterogeneous systems. As a consequence, the discussion focuses on the administration of the whole set of resources providing knowledge about a single subject of care (SoC). New trends make the SoC administrator and responsible for all these elements (related to his/her demographic data, health, well-being, social conditions, etc.) and s/he is granted the ability of controlling access to them by third parties. The subject of care exchanges his/her passive role without any decision capacity for an active one allowing to control who accesses what.
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Lodewijk Bos, ICMCC
“When the Dutch started creating an EHR over a decade and a half ago, primary care providers soon saw the benefits of electronic records over paper ones, resulting in the Netherlands having one of the highest adoption rated worldwide amongst PCPs. However, they did not consider the patient as en essential part of the stakeholders. So after years they had to reconsider the system to allow the patient access to their record. A major oversight.
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Fisher B et al, Medical and Care Compunetics 3, 2006
There are now a number of systems across the world that enables patients to view their electronic health records. These include kiosks that have fingerprint authentication and also net-based access. The paper outlines the approach taken by the UK NHS explains the legal underpinning of access. Starting form the premise that record access is here to stay the paper outlines the research on benefits and risks of record access, concluding that, with simple precautions, record access is safe and affords many benefits to both patients and clinicians.
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Ted Eytan, MD
“This is the second post today about the value of patients having access to their health information online, in one of two “frontier” areas, imaging results.
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Tiik M, Ross P. Medical and Care Compunetics 6, 2010
Estonia is the first country which has implemented a nationwide electronic health record system and gives full access to its citizens. This provides new opportunities to citizens, healthcare providers and e-health developers.
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Patty Enrado, EHRWatch
“Is third time the charm for New Hampshire? Legislators in New Hampshire have been trying to pass legislation that gives patients control over who sees their medical records. Under HB 1649, patients can request an audit of who has accessed their electronic medical records.
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theMobileHealthCrowd
“According to LSS Data Systems, Citizens Memorial Healthcare have rolled out their web-based LSS Patient Portal. Since their pilot implementation at two of their clinics last spring, CMH has extended the portal to patients to approximately 10 of their clinics, enabling secure online access to their medical record information via Citizens’ own web site.
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Lodewijk Bos, ICMCC
“But how participatory are we really? The answer you often hear is that we are patient centric.
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Chaired by Prof. Dr. Bernd Blobel, this session will take place on 10 September.
This ICMCC session has been supported by the Working Group “Electronic Health Records” of the European Federation for Medical Informatics (EFMI) and the Working Group “Standards for Interoperability and EHR” of the German Society for Medical Informatics, Biometry and Epidemiology (GMDS).
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Falcão-Reis, Filipa et al, Medical and Care Compunetics 5, 2008
Electronic Health Record (EHR) systems are becoming more and more sophisticated and include nowadays numerous applications, which are not only accessed by medical professionals, but also by accounting and administrative personnel. This could represent a problem concerning basic rights such as privacy and confidentiality. The principles, guidelines and recommendations compiled by the OECD protection of privacy and trans-border flow of personal data are described and considered within health information system development.
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Popovich, Michael L. et al, Medical and Care Compunetics 5, 2008
Despite the promise of better health care through information-centric patient empowerment, little progress has been made. The issue is not that the data do not exist in a useable form, nor that technologies are lacking that would enable access to this information. There are two primary challenges standing in the way of patient empowerment: (1) in the private sector there is no proven revenue model for providing this access and (2) in the public sector the standard argument is confidentiality of information.
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