Many of the aspects covered on this page are still subject to debate. We hope that this portal will contribute to the discussion on a global level.
This page does not pretend to offer solutions for these problems, we merely want to raise awareness. Many issues will and only can be dealt with on a national level, although we would encourage some global guidelines. Especially a question like who is going to have access to which part of the record is an issue that will very probably be nationally solved, but does have a clear global aspect (travelling). Our blog welcomes your participation to these discussions.
Ethical Aspects of Health Information Supply and Patient Access to e-Health Records
Keynote at the ICMCC event 2008, by Prof. Georges Kutukdjian.
February 15, 2007, the European Commission published a "Working Document on the processing of personal data relating to health in electronic health records (EHR)"
We would like to point to a document from the World Privacy Forum, on Access, Amendment, and Accounting of Disclosures: FAQs for Medical ID Theft Victims, dating June 2006.
This document followed the WPF's report: Medical Identity Theft: The Information Crime that Can Kill You, May, 2006.
La consulta del historial clínico a través de Internet en Cataluña empezará a aplicarse a partir del segundo semestre de 2010, según anunció hoy la consellera de Salud, Marina Geli.
[ More ]
Karrey Britt, LJWorld
“The Department of Veterans Affairs is a pioneer when it comes to electronic health records and is serving as an example of what a future national health information network might look like.
The VA began using its own electronic health system in the early 1980s, when the Macintosh computer was introduced.
[ More ]
e-Patient Dave, e-Patients.net
“Last Tuesday, June 2, I was on a consumer panel at a board meeting of the National eHealth Collaborative.
[ More ]
“A dozen organizations including patient advocates, vendors and health information exchanges have sent members of Congress a letter urging patient access to their electronic health records.
[ More ]
Will electronic health records (EHRs) minimize mistakes that may arise from sloppy handwriting and illegible files? How do we certify the accuracy of patient-provided health information? The question is fielded by Gail Graham (VA), John Hammarlund (CMS), and Scott Armstrong (Group Health).
[ More ]
Wiljer, David et al, J Med Internet Res, 10(4)
Providing patients with access to their electronic health records offers great promise to improve patient health and satisfaction with their care, as well to improve professional and organizational approaches to health care. Although many benefits have been identified, there are many questions about best practices for the implementation of patient accessible Electronic Health Records (EHRs).
[ More ]
Dr Amir Hannan has published a new blog on Patient Record Access.
add Dr Hannan’s Blog to My MSN
add Dr Hannan’s Blog to iGoogle
Philipp Grätzel von Grätz, Ärzte Zeitung
“Was die Niederlande bei ihrer elektronischen Patientenakte machen, erinnert mit dezentraler Speicherung der Daten und Heilberufsausweis an deutsche Konzepte. Nur die Chipkarte fehlt.
[ More ]
Lodewijk Bos, ICMCC Blog
“In my last blog entry I concluded that there seems to be some confusion in The Netherlands on the structure and functioning of EHRs, especially concerning patient access.
[ More ]
“The NHS Care Records Board will today confirm that patients will be asked for permission to share their record at each clinical encounter.
[ More ]
John Carvel, The Guardian
“NHS staff are to be required to seek patients’ specific consent before reading their electronic medical records under tougher rules to protect confidentiality due to be unveiled today.
[ More ]
“NHS Connecting for Health has launched a public consultation on the wider use of patient information held in the Secondary Uses Service that is being created as part of the NHS Care Records Service.
The 12-week consultation run by Tribal Consulting will collect patient views on who should have access to data, what purposes it should be used for apart from direct patient care, who should control access and what consent options there should be for patients.”
e-Health Insider, 17 September 2008
“Americans have the right to access and take ownership of their health records, yet few take advantage of it despite the increasing complexity and cost of health care.
Physicians, for their part, are wary of relying on records provided by patients.”
Gary Gosselin, Michigan Business Review, 3 September 2008
“The Washington State Health Care Authority is spending $1.7 million to finance health record banking pilot projects in three communities.
Two of the health care providers involved in the project have teamed up with Microsoft HealthVault, and the other is partnered with Google Health.”
Nancy Ferris, Government Health IT, 29 August 2008
“After the Cleveland Clinic, Boston’s Beth Israel Deaconess Medical Center (BIDMC) was the next hospital system to allow their customers to export their health records from BIDMC’s homegrown “PatientSite” to Google Health. Yesterday, BIDMC announced that the customer now has a choice and may also export their records to Microsoft’s HealthVault.”
John Moore, Chilmark Research, 27 August 2008
“It’s not the flying car or the video phone. It’s really coming.
Easy, privacy-protected access to all of a patient’s medical history might have lagged behind the Internet revolution by a decade, but because of federal funds and local initiative, it will be a reality in New Mexico starting next year.”
Thomas Munro, New Mexico Business Weekly, 20 July 2008
“HealthSpace, the government’s secure online site for patients, is to be expanded to include shared records and GP appointment booking, according to the Health Informatics Review.
The review, published last week, outlines a much wider role for HealthSpace and says its consultation highlighted strong support for the HealthSpace initiative.”
e-Health Insider, 15 July 2008
“Medicare has started a yearlong pilot project in South Carolina testing online personal health records as a way to enable beneficiaries to get more involved in their care and better manage their conditions.
Patients control their records and decide who has access to them — from doctors to family members. Users need an ID and password. Physicians could add information to the PHR, but patients could remove it.”
Dave Hansen, AMNews, 21 July 2008
“Recent partnerships by two U.S. health insurers with technology giants Microsoft Corp. and Google highlight just how much work must be done to achieve easy access to personal health records.
Recently, Kaiser Permanente said it’s working with Microsoft on a pilot program to give patients more control over their personal health information. It will connect Kaiser’s personal health record, My Health Manager, to Microsoft’s HealthVault, launched last October. Blue Cross Blue Shield of Massachusetts became the first health insurer to partner with Google Health to create PHRs. Google Health, launched in May, allows patients to store and organize their medical records online (BestWire, June 13, 2008).”
Trading Markets, 7 July 2008
“A website allowing patients to manage their health records is to be set up by the government in an attempt to give people more control over their care.
The website, HealthSpace, which is being piloted, will allow patients to record information about their health as well as what treatments they are receiving.”
David Batty, The Guardian, 4 July 2008