RA Research
Patient access to complex chronic disease records on the Internet
Bartlett C et al, BMC Medical Informatics and Decision Making, 12(1)
Background
Access to medical records on the Internet has been reported to be acceptable and popular with patients, although most published evaluations have been of primary care or office-based practice. We tested the feasibility and acceptability of making unscreened results and data from a complex chronic disease pathway (renal medicine) available to patients over the Internet in a project involving more than half of renal units in the UK.
Methods
Content and presentation of the Renal PatientView (RPV) system was developed with patient groups. It was designed to receive information from multiple local information systems and to require minimal extra work in units. After piloting in 4 centres in 2005 it was made available more widely. Opinions were sought from both patients who enrolled and from those who did not in a paper survey, and from staff in an electronic survey. Anonymous data on enrolments and usage were extracted from the webserver.
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15 April 2013 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: UK | EHR: EHR, EHR USA | Tags: Access, Chronic Diseases, Internet, Renal, Universal patient identifiers, XML
Patient Experiences With Full Electronic Access to Health Records and Clinical Notes Through the My HealtheVet Personal Health Record Pilot: Qualitative Study
Woods SS et al, J. Med. Internet Res., 15(3)
BACKGROUND:
Full sharing of the electronic health record with patients has been identified as an important opportunity to engage patients in their health and health care. The My HealtheVet Pilot, the initial personal health record of the US Department of Veterans Affairs, allowed patients and their delegates to view and download content in their electronic health record, including clinical notes, laboratory tests, and imaging reports.
OBJECTIVE:
A qualitative study with purposeful sampling sought to examine patients’ views and experiences with reading their health records, including their clinical notes, online.
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4 April 2013 | No Comments »
Categories: Patients, Record Access, Science | Country: United States | EHR: EHR USA | Tags: Access, e-Health, Patient, phr
Inviting patients to read their doctors’ notes: a quasi-experimental study and a look ahead
Delbanco T et al, Annals of internal medicine, 157(7)
BACKGROUND
Little information exists about what primary care physicians (PCPs) and patients experience if patients are invited to read their doctors’ office notes.
OBJECTIVE
To evaluate the effect on doctors and patients of facilitating patient access to visit notes over secure Internet
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15 January 2013 | No Comments »
Categories: RA Research, Record Access, Science | Country: United States | EHR: EHR, EHR USA | Tags: Access, Communication, Confidentiality, GP, Internet, Patient, Physician-Patient Relationship, Primary Care
Association of Online Patient Access to Clinicians and Medical Records With Use of Clinical Services
Palen TE et al, JAMA. 2012 Nov 21;308(19)
Context
Prior studies suggest that providing patients with online access to health records and e-mail communication with physicians may substitute for traditional health care services.
Objective
To assess health care utilization by both users and nonusers of online access to health records before and after initiation of MyHealthManager (MHM), a patient online access system.
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5 December 2012 | No Comments »
Categories: News, Patients, RA Research, Record Access, Science | Country: United States | EHR: EHR, EHR USA | Tags: Access
Embedding online patient record access in UK primary care: a survey of stakeholder experiences
Pagliari C et al, JRSM short reports, 3(5)
OBJECTIVES
To explore the integration of online patient Record Access within UK Primary Care, its perceived impacts on workload and service quality, and barriers to implementation.
DESIGN
Mixed format survey of clinicians, administrators and patients. Telephone interviews with non-users.
SETTING
Primary care centres within NHS England that had offered online record access for the preceding year.
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7 June 2012 | No Comments »
Categories: Patients, RA Research, Record Access, Science, UK EHR | Country: UK | EHR: EHR, EHR UK | Tags: Access, integration, Patient, Primary Care
Empowering citizens with access control mechanisms to their personal health resources
Calvillo J et al, International Journal of Medical Informatics, 2012
Background
Advancements in information and communication technologies have allowed the development of new approaches to the management and use of healthcare resources. Nowadays it is possible to address complex issues such as meaningful access to distributed data or communication and understanding among heterogeneous systems. As a consequence, the discussion focuses on the administration of the whole set of resources providing knowledge about a single subject of care (SoC). New trends make the SoC administrator and responsible for all these elements (related to his/her demographic data, health, well-being, social conditions, etc.) and s/he is granted the ability of controlling access to them by third parties. The subject of care exchanges his/her passive role without any decision capacity for an active one allowing to control who accesses what.
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24 April 2012 | No Comments »
Categories: Patients, RA Research, Record Access, Science | EHR: EHR | Tags: Access, Distributed systems, Empowerment, integration, Medical Informatics, Patient, Semantic
Access to Radiologic Reports via a Patient Portal: Clinical Simulations to Investigate Patient Preferences
Johnson AJ et al, Journal of the American College of Radiology, 9(4)
Purpose
The aim of this study was to determine (1) the patient-preferred timing characteristics of a system for online patient access to radiologic reports and (2) patient resource needs and preferences after exposure to reports.
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3 April 2012 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: United States | EHR: EHR, EHR USA | Tags: Access, Patient, Portal, Radiology
Improving Electronic Health Records Retrieval Using Contexts
Prados-Suárez B et al, Expert Systems with Applications, 2012
This paper aims to solve a recently arose problem, related to the access to the Electronic Health Records (EHR) in the Hospitals. Due to the digitalization of the information contained in the medical records, and the growing availability of devices that directly generate digital documents to include in it, the EHR are becoming unmanageable. Even more, to find a concrete item of information relevant for a given assistance act is a very hard, difficult and time-consuming task. To solve it we propose here the definition of contexts of access to the EHR, to exploit the logical division of the information inside each document in the EHR into data groups, and the computation of the pertinence of each data group to each context.
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6 February 2012 | No Comments »
Categories: Clinicians, RA Research, Record Access, Science | EHR: EHR | Tags: Access, Context
Electronic health record goes personal world-wide
Li YC et al, Yearbook of Medical Informatics, 2009(1)
OBJECTIVE
Increasing patient demand for convenient access to their own healthcare data has led to more personal use of the Electronic Health Record (EHR). With “consumer empowerment” being an important issue of EHR, we are seeing a more “patient-centric” approach of EHR from countries around the world. Researchers have reported on issues in EHR sharing including concerns on privacy and security, consumer empowerment, competition among providers, and content standards. This study attempts to analyze prior research and to synthesize comprehensive, empirically-based conceptual models of EHR for personal use.
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29 January 2012 | No Comments »
Categories: Patients, RA Research, Record Access, Science | EHR: EHR | Tags: Access, Patient, phr
Lessons learned from usability testing of the VA’s personal health record
Haggstrom DA et al, J Am Med Inform Assoc, 18 Suppl 1
In order to create user-centered design information to guide the development of personal health records (PHRs), 24 patients participated in usability assessments of VA’s MyHealtheVet program. Observational videos and efficiency measures were collected among users performing four PHR scenarios: registration and log-in, prescription refill, tracking health, and searching for health information. Twenty-five percent of users successfully completed registration. Individuals preferred prescription numbers over names, sometimes due to privacy concerns.
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6 January 2012 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: United States | EHR: EHR, EHR USA | Tags: Access, Patient, phr, Usability
Access to the Medical Record for Patients and Involved Providers: Transparency Through Electronic Tools
Feeley TW et al, Annals of Internal Medicine, 155(12)
Physicians’ notes are one of the oldest tools in medicine and have evolved into today’s electronic medical record. As we move toward greater transparency in health care, one emerging concept is that sharing information among patients, caregivers, and involved clinicians can improve efficiency, decrease redundancy, and decrease cost. The concept of improving health care delivery by sharing the medical record with the patient is not new.
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20 December 2011 | No Comments »
Categories: RA Research, Record Access, Science | Country: United States | EHR: EHR, EHR USA | Tags: Access, emr, Notes, Patient, Physicians, Provider, Transparency
Inviting Patients to Read Their Doctors’ Notes: Patients and Doctors Look Ahead
Walker J et al, Annals of Internal Medicine, 155(12)
Background:
Little is known about what primary care physicians (PCPs) and patients would expect if patients were invited to read their doctors’ office notes.
Objective:
To explore attitudes toward potential benefits or harms if PCPs offered patients ready access to visit notes.
Design:
he PCPs and patients completed surveys before joining a voluntary program that provided electronic links to doctors’ notes.
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20 December 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: United States | Tags: Access, Notes, Patient, Primary Care
Analysis of the definition and utility of personal health records using q methodology
Kim J, Bates DW. J Med Internet Res, 13(4)
BACKGROUND
Personal health records (PHRs) remain a relatively new technology and concept in practice even though they have been discussed in the literature for more than 50 years. There is no consensus on the definition of a PHR or PHR system even within the professional societies of health information technology.
OBJECTIVE
Our objective was to analyze and classify the opinions of health information professionals regarding the definitions of the PHR.
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1 December 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | EHR: EHR | Tags: phr
The challenges in making electronic health records accessible to patients
Beard L et al, J Am Med Inform Assoc, 19(1)
It is becoming increasingly apparent that there is a tension between growing consumer demands for access to information and a healthcare system that may not be prepared to meet these demands. Designing an effective solution for this problem will require a thorough understanding of the barriers that now stand in the way of giving patients electronic access to their health data.
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27 November 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Tags: Access, Patient
Policies for patient access to clinical data via PHRs: current state and recommendations
Collins SA et al, J Am Med Inform Assoc, 2011
Objective
Healthcare delivery organizations are increasingly using online personal health records (PHRs) to provide patients with direct access to their clinical information; however, there may be a lack of consistency in the data made available. We aimed to understand the general use and functionality of PHRs and the organizational policies and decision-making structures for making data available to patients.
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13 September 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: United States | EHR: EHR, EHR USA | Tags: Access, Patient, phr
Is Canada ready for patient accessible electronic health records? A national scan
Urowitz S et al, BMC Medical Informatics and Decision Making, 8
BACKGROUND
Access to personal health information through the electronic health record (EHR) is an innovative means to enable people to be active participants in their own health care. Currently this is not an available option for consumers of health. The absence of a key technology, the EHR, is a significant obstacle to providing patient accessible electronic records. To assess the readiness for the implementation and adoption of EHRs in Canada, a national scan was conducted to determine organizational readiness and willingness for patient accessible electronic records.
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21 August 2011 | No Comments »
Categories: Patients, Record Access, Science | Country: Canada | EHR: EHR, EHR Canada | Tags: Access, Patient
Patient Record Access – The Time Has Come
Fisher B et al, Medical and Care Compunetics 3, 2006
There are now a number of systems across the world that enables patients to view their electronic health records. These include kiosks that have fingerprint authentication and also net-based access. The paper outlines the approach taken by the UK NHS explains the legal underpinning of access. Starting form the premise that record access is here to stay the paper outlines the research on benefits and risks of record access, concluding that, with simple precautions, record access is safe and affords many benefits to both patients and clinicians.
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9 June 2011 | No Comments »
Categories: Conferences, RA Benefits, RA Legal, RA Research, Record Access, Science, UK EHR | Country: UK | EHR: EHR, EHR UK | Tags: Access, Empowerment, Kiosk, Patient, Web
Full access to medical records does not modify anxiety in cancer patients
Gravis G et al, Cancer, 2011
BACKGROUND:
Information is crucial for increasing the patients’ empowerment and autonomy in relevant decision‐making processes, especially in malignant diseases. However, the extent to which information should be delivered is debated. The objective of this study was to assess the impact of providing systematic full access (SFA) to the medical record on anxiety, quality of life, and satisfaction.
METHODS:
Patients with newly diagnosed breast cancer, colon cancer, or lymphoma who had received adjuvant chemotherapy in an outpatient setting were included in a randomized controlled trial comparing those who requested access (RA) and those who provided SFA to the medical record. Anxiety was assessed using the Spielberger State‐Trait Anxiety Inventory before, during, and at the end of treatment. Quality of life was evaluated using the European Organization for Research and Cancer quality‐of‐life questionnaire (EORTC QLQ‐C30) before and at the end of treatment. Patients’ satisfaction and perception of the organized medical record (OMR) were evaluated using a specifically designed questionnaire at the end of treatment.
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24 May 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science | Country: France | EHR: EHR, EHR France | Tags: Access, emr, Oncology, Patient, Satisfaction
How patients use access to their electronic GP record–a quantitative study
Bhavnani V et al, Family Practice, 28(2)
BACKGROUND
Record access is likely to become an integral part of routine care in the UK. While existing research suggests that record access improves self-care and improves relationships between patients and clinicians, little is known about how patients make use of their ability to access their records or the impact that this has on health behaviour.
AIM
To explore patients’ use of access to their electronic GP record and the impact of that process on their health behaviour.
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28 March 2011 | No Comments »
Categories: Patients, RA Research, Record Access, Science, UK EHR | Country: UK | EHR: EHR, EHR UK | Tags: Access, Behaviour, GP, Patient
Using NHS Patient Data for Research Without Consent
Brown I et al,
This article analyses the legality of the use of electronic patient records in the NHS for research without explicit patient consent under UK and EU law, with particular reference to the adequacy of the information provided to patients and the increasing difficulties of achieving de-identification. In section II, we describe the main NHS databases used for medical research purposes in England and the transparency of this use, and the general problem of re-identification.
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14 March 2011 | No Comments »
Categories: Patients, RA News, RA Research, Record Access, Science | Country: UK | EHR: EHR, EHR UK | Tags: Confidentiality, Consent, De-identification, emr, Privacy, Research, Secondary Data Use
