Give control of electronic health records back to patients
Stephen Strauss, CBC News
“When it comes to ordinary people having access to and use of our personal electronic health records (EPHR), it’s probably time to go to court.
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ICMCC |
the international council on medical & care compunetics |
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record access
Stephen Strauss, CBC News
“When it comes to ordinary people having access to and use of our personal electronic health records (EPHR), it’s probably time to go to court.
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Deborah C. Peel, Healthcare IT News
“A disturbing new trend is emerging when Americans find out that bio-data is being used for purposes they never agreed to: Lawsuits are being filed against state agencies and state universities when residents find out that sensitive health information is used in ways they never expected or gave permission for.
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Trisha Torrey, About.com
I do a lot of public speaking to groups of patients, and some of those talks include mention of Electronic Medical Records (EMRs), also called EHRs (electronic health records.)
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Dissent, Personal Health Information Privacy
“Two reports of how Kaiser Permanente approaches security left this blogger scratching her head last week as the reports might seem to contradict each other. And because the VA Watchdog had the same questions I have, I decided to follow-up.
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El País
La consulta del historial clínico a través de Internet en Cataluña empezará a aplicarse a partir del segundo semestre de 2010, según anunció hoy la consellera de Salud, Marina Geli.
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Sarah Bruce, e-Health Europe
“The University of Pittsburgh Medical Centre has developed a personal, bidirectional health record that will enable patients to add health information to records maintained by doctors and hospitals.
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Richard Staines, Pulse
“London LMCs have created an online information resource for GPs to ensure they are aware of roll-out of the Summary Care Record across the capital.
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Diana Manos, Healthcare IT News
“Members of the Health IT Standards Committee believe more federal clarification will be required surrounding patient access to their electronic health records (EHRs), as required under the interim final rule on standards and certification.
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Medisch Contact
“‘Als dokters hebben wij ons de ziekte onterecht toegeëigend. Maar de patiënt moet de regie terugkrijgen’, zegt Bart van Aken, gynaecoloog en directeur innovatie in het Flevoziekenhuis in Almere. Hij maakt zich er al jaren hard voor: patiënten hebben recht op informatie over hun ziekte, zodat ze de regie kunnen voeren.
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“Now is when the rubber meets the road. For most of 2009, vendors, hospital leaders, consultants and other industry experts professed to know what it will take to achieve meaningful use of electronic health records. But then the Centers for Medicare & Medicaid Services in December issued its proposed rule. As IT experts read through the 500-plus pages, it became clear where the federal government was setting the bar and how far providers had to climb.
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Patty Enrado, EHRWatch
“Is third time the charm for New Hampshire? Legislators in New Hampshire have been trying to pass legislation that gives patients control over who sees their medical records. Under HB 1649, patients can request an audit of who has accessed their electronic medical records.
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Keith W. Boone, Healthcare Standards
“One of the provisions of the HITECH Act and the regulations that have been either created or proposed as a result of it is that patients should be given copies of their health information, including problems, medications and allergies, but also discharge summaries, instructions and procedures.
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NPCF
“medischegegevens.nl maakt persoonlijke medische informatie direct toegankelijk voor patiënten in een veilige internet-omgeving.
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Collin Evans, Dossia Blog
“A recent CNN.com article (http://www.cnn.com/2010/HEALTH/01/14/medical.records) entitled “Patients demand: ‘Give us our damned data’” highlights the barriers that many patients must overcome in order to get access to their own medical records.
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Cheryl Clark, HealthLeaders Media
“Nearly two-thirds of Americans who answered a phone survey last month said they do not trust the federal government–including the U.S. Health and Human Services Agency–to protect their health record privacy.
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Fred Schulte, Huffington Post Investigative Fund
“When Kaiser Permanente started giving patients online access to their medical records nearly five years ago, it offered the same lab reports doctors saw—complete with warning flags highlighting any abnormal results.
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Brian Ahier, Healthcare IT
“The proposed rule on meaningful use will require that patients are provided with an electronic copy of their health information (including diagnostic test results, problem list, medication lists, and allergies) upon request.
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theMobileHealthCrowd
“According to LSS Data Systems, Citizens Memorial Healthcare have rolled out their web-based LSS Patient Portal. Since their pilot implementation at two of their clinics last spring, CMH has extended the portal to patients to approximately 10 of their clinics, enabling secure online access to their medical record information via Citizens’ own web site.
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Medicalfacts
“Zorgverleners in de regio Rijnmond kunnen binnenkort gemakkelijker medische informatie met elkaar delen. Daardoor daalt de kans op medicatiefouten of, bijvoorbeeld, het over het hoofd zien van een allergie. Zorginstellingen die deel uitmaken van het Zorgportaal Rijnmond gaan hiertoe gebruikmaken van dezelfde internationale standaarden.
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Ted Eytan, MD
“I love rules and regulations, and I don’t mean that sarcastically, because a rule or a regulation isn’t a rule or regulation.
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